So we are past the Christmas holidays and back into the swing of routine. Paul and the kids were home for 12 days! We got together with friends and family and just hung out a lot. I have some horrible virus and spent most of the past 10 days coughing and napping, but thankfully no one else in the family got it.
Update on Lily, she seems to be coping much better these days. She is quick to point out that this does not translate to a reduction in pain. It still hurts all the time and is still fully encompassing her right leg from toes to just below the hip. Hopefully it will not spread any further. She has been doing lots of therapy on her Wii- Outdoor Challenge, it comes with a mat (like DDR) and she can run and jump on it while being distracted by the game. She had put on her Santa list that she wanted to be pain-free for Christmas, doesn't that just shatter your heart. (and this from a kid who is in on the secret of the magic of Santa) She turns 11 on Thursday. I can hardly believe it. Paul just put some of our old video on DVD, including her first step (at 8 1/2 monthes). She seemed so tiny and unstoppable. I hate to think of this monster (RSD) getting in her way. We are happy that we finally found a good psychologist locally. They seem to have a good rapport and she has a good plan to work with Lily and all the stress of this.
The crazy thing is that to look at her, she seems to be doing so well. She went sledding over break and playing in the snow, taking a scooter ride on one of the snow-free days, swimming, jumping on that Wii mat and is generally a happy giddy girl. But then she'll let us in on the pain, and it's jarring. Maybe soon it will translate, all her hard work and attitude will carry over and she will actually be pain-free.
The boys are good...they also love the Wii. Zack loves Mario Kart, but his driving skills need work. Tim and Andy are into Lego Starwars. And everybody loves the outdoor challenge. It has all sorts of stuff life sledding, log jumping, stomp-a-mole. It's very silly but they love it and they are really active when they do it. I myself love skeet-shooting...who knew?!
That's all folks.
~Jenny
